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Clinicians, Researchers, and Educators
Industry
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FOCUS tables for Clinicians, Researchers, and Educators
Table 1a – Communication Strategies
Table 2 – Patient Care Experiences
FOCUS tables for Industry
Industry Table 2 – Client Experiences
Industry Table 3 – Client Changes
Industry Table 4- Company Changes
References
Bernhardt, B. A., Biesecker, B. B., & Mastromarino, C. L. (2000). Goals, benefits, and outcomes of genetic counseling: client and genetic counselor assessment. American Journal of Medical Genetics, 94(3), 189–97.
Chivers Seymour, K., Addington-Hall, J., Lucassen, A. M., & Foster, C. L. (2010). What facilitates or impedes family communication following genetic testing for cancer risk? A systematic review and meta-synthesis of primary qualitative research. Journal of Genetic Counseling, 19(4), 330–42. http://doi.org/10.1007/s10897-010-9296-y
Committee on Quality of Health Care in America. (2001). Crossing the Quality Chasm: A New Health System for the 21st Century. National Academies Press. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/25057539
DiClemente, R. J., Crosby, R. A., & Kegler, M. (2009). Emerging theories in health promotion pracitce and research. (R. J. DiClemente, R. A. Crosby, & M. Kegler, Eds.) (2nd ed.). San Francisco, CA: Jossey-Bass.
Donabedian, A. (1988). The Quality of Care – How Can It Be Assessed? JAMA, 260(12), 1743–1748. http://doi.org/10.1001/jama.1988.03410120089033
George, R., Kovak, K., & Cox, S. L. (2015). Aligning policy to promote cascade genetic screening for prevention and early diagnosis of heritable diseases. Journal of Genetic Counseling, 24(3), 388–99. http://doi.org/10.1007/s10897-014-9805-5
Glanz, K., & Bishop, D. B. (2010). The role of behavioral science theory in development and implementation of public health interventions. Annual Review of Public Health, 31, 399–418. http://doi.org/10.1146/annurev.publhealth.012809.103604
Ha Dinh, T. T., Bonner, A., Clark, R., Ramsbotham, J., & Hines, S. (2016). The effectiveness of the teach-back method on adherence and self-management in health education for people with chronic disease: a systematic review. JBI Database of Systematic Reviews and Implementation Reports, 14(1), 210–47. http://doi.org/10.11124/jbisrir-2016-2296
Hallowell, N., Lawton, J., & Gregory, S. (2005). Reflections on Research: The Realitities of Doing Research in the Social Sciences. New York, NY: Open University Press.
Hartmann, J. E., Veach, P. M., MacFarlane, I. M., & LeRoy, B. S. (2015). Genetic counselor perceptions of genetic counseling session goals: a validation study of the reciprocal-engagement model. Journal of Genetic Counseling, 24(2), 225–37. http://doi.org/10.1007/s10897-013-9647-6
Hoerger, M., Epstein, R. M., Winters, P. C., Fiscella, K., Duberstein, P. R., Gramling, R., … Kravitz, R. L. (2013). Values and options in cancer care (VOICE): study design and rationale for a patient-centered communication and decision-making intervention for physicians, patients with advanced cancer, and their caregivers. BMC Cancer, 13, 188. http://doi.org/10.1186/1471-2407-13-188
House, J. S. (1981). Work stress and social support. Addison-Wesley Pub Co.
Kenyon, C. C., Palakshappa, D., & Feudtner, C. (2015). Logic Models–Tools to Bridge the Theory-Research-Practice Divide. JAMA Pediatrics, 169(9), 801–2. http://doi.org/10.1001/jamapediatrics.2015.1365
Kinney, A. Y., Boonyasiriwat, W., Walters, S. T., Pappas, L. M., Stroup, A. M., Schwartz, M. D., … Higginbotham, J. C. (2014). Telehealth personalized cancer risk communication to motivate colonoscopy in relatives of patients with colorectal cancer: the family CARE Randomized controlled trial. Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology, 32(7), 654–62. http://doi.org/10.1200/JCO.2013.51.6765
Légaré, F., O’Connor, A. C., Graham, I., Saucier, D., Côté, L., Cauchon, M., & Paré, L. (2006). Supporting patients facing difficult health care decisions: use of the Ottawa Decision Support Framework. Canadian Family Physician Medecin de Famille Canadien, 52, 476–7. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/17327891
Lerner, J. S., Li, Y., Valdesolo, P., & Kassam, K. S. (2015). Emotion and Decision Making. Annu. Rev. Psychol, 6633. http://doi.org/10.1146/annurev-psych-010213-115043
Lundahl, B., Moleni, T., Burke, B. L., Butters, R., Tollefson, D., Butler, C., & Rollnick, S. (2013). Motivational interviewing in medical care settings: a systematic review and meta-analysis of randomized controlled trials. Patient Education and Counseling, 93(2), 157–68. http://doi.org/10.1016/j.pec.2013.07.012
Makoul, G., & Clayman, M. L. (2006). An integrative model of shared decision making in medical encounters. Patient Education and Counseling, 60(3), 301–12. http://doi.org/10.1016/j.pec.2005.06.010
McAllister, M., & Dearing, A. (2015). Patient reported outcomes and patient empowerment in clinical genetics services. Clinical Genetics, 88(2), 114–21. http://doi.org/10.1111/cge.12520
McAllister, M., Moldovan, R., Paneque, M., & Skirton, H. (2016). The need to develop an evidence base for genetic counselling in Europe. European Journal of Human Genetics : EJHG, 24(4), 504–5. http://doi.org/10.1038/ejhg.2015.134
McAllister, M., Payne, K., Macleod, R., Nicholls, S., Dian Donnai, & Davies, L. (2008). Patient empowerment in clinical genetics services. Journal of Health Psychology, 13(7), 895–905. http://doi.org/10.1177/1359105308095063
McAllister, M., Payne, K., Nicholls, S., MacLeod, R., Donnai, D., & Davies, L. M. (2007). Improving service evaluation in clinical genetics: identifying effects of genetic diseases on individuals and families. Journal of Genetic Counseling, 16(1), 71–83. http://doi.org/10.1007/s10897-006-9046-3
Mcallister, M., Wood, A., Dunn, G., Shiloh, S., & Todd, C. (2011). The Genetic Counseling Outcome Scale: A new patient-reported outcome measure for clinical genetics services. Clinical Genetics, 79, 413–424. http://doi.org/10.1111/j.1399-0004.2011.01636.x
Meiser, B., Butow, P. N., Barratt, A. L., Schnieden, V., Gattas, M., Kirk, J., … Psychological Impact Collaborative Group. (2001). Long-term outcomes of genetic counseling in women at increased risk of developing hereditary breast cancer. Patient Education and Counseling, 44(3), 215–25.
Meiser, B., Irle, J., Lobb, E., & Barlow-Stewart, K. (2008). Assessment of the content and process of genetic counseling: a critical review of empirical studies. Journal of Genetic Counseling, 17(5), 434–51. http://doi.org/10.1007/s10897-008-9173-0
Miller, W. R., & Rollnick, S. (2013). Motivational interviewing: helping people change (3rd ed.). New York, NY: The Guilford Press.
National Quality Measures Clearninghouse. (2017). Retrieved February 6, 2017, from https://www.qualitymeasures.ahrq.gov/
Nci, DCCPS, & Arp. (2007). Patient-Centered Communication in Cancer Care: Promoting Healing & Reducing Suffering. Bethesda, MD: NIH publication.
Nilsen, P., Eccles, M., Grimshaw, J., Walker, A., Johnston, M., Pitts, N., … Baumgardner, M. (2015). Making sense of implementation theories, models and frameworks. Implementation Science, 10(1), 53. http://doi.org/10.1186/s13012-015-0242-0
Paul, J., Metcalfe, S., Stirling, L., Wilson, B., & Hodgson, J. (2015). Analyzing communication in genetic consultations–a systematic review. Patient Education and Counseling, 98(1), 15–33. http://doi.org/10.1016/j.pec.2014.09.017
Payne, K., Nicholls, S. G., McAllister, M., MacLeod, R., Ellis, I., Donnai, D., & Davies, L. M. (2007). Outcome measures for clinical genetics services: a comparison of genetics healthcare professionals and patients’ views. Health Policy (Amsterdam, Netherlands), 84(1), 112–22. http://doi.org/10.1016/j.healthpol.2007.03.005
Payne, K., Nicholls, S., McAllister, M., Macleod, R., Donnai, D., & Davies, L. M. (2007). Outcome measurement in clinical genetics services: a systematic review of validated measures. Value in Health : The Journal of the International Society for Pharmacoeconomics and Outcomes Research, 11(3), 497–508. http://doi.org/10.1111/j.1524-4733.2007.00259.x
Pengchit, W., Walters, S. T., Simmons, R. G., Kohlmann, W., Burt, R. W., Schwartz, M. D., & Kinney, A. Y. (2011). Motivation-based intervention to promote colonoscopy screening: an integration of a fear management model and motivational interviewing. Journal of Health Psychology, 16(8), 1187–97. http://doi.org/10.1177/1359105311402408
Peters, K. F., & Petrill, S. A. (2011). A comparison of the background, needs, and expectations of patients seeking genetic counseling services. American Journal of Medical Genetics. Part A, 155A(4), 697–705. http://doi.org/10.1002/ajmg.a.33979
Pithara, C. (2014). Identifying outcomes of clinical genetic services: qualitative evidence and methodological considerations. Journal of Genetic Counseling, 23(2), 229–38. http://doi.org/10.1007/s10897-013-9654-7
Redlinger-Grosse, K., Veach, P. M., Cohen, S., LeRoy, B. S., MacFarlane, I. M., & Zierhut, H. (2015). Defining Our Clinical Practice: The Identification of Genetic Counseling Outcomes Utilizing the Reciprocal Engagement Model. Journal of Genetic Counseling. http://doi.org/10.1007/s10897-015-9864-2
Roter, D., Ellington, L., Erby, L. H., Larson, S., & Dudley, W. (2006). The Genetic Counseling Video Project (GCVP): models of practice. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics, 142C(4), 209–20. http://doi.org/10.1002/ajmg.c.30094
Ruiter, R. A. C., Kessels, L. T. E., Peters, G.-J. Y., & Kok, G. (2014). Sixty years of fear appeal research: current state of the evidence. International Journal of Psychology : Journal International de Psychologie, 49(2), 63–70. http://doi.org/10.1002/ijop.12042
Silvey, K., Stock, J., Hasegawa, L. E., & Au, S. M. (2009). Outcomes of genetics services: creating an inclusive definition and outcomes menu for public health and clinical genetics services. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics, 151C(3), 207–13. http://doi.org/10.1002/ajmg.c.30218
Street, R. L. (2013). How clinician-patient communication contributes to health improvement: modeling pathways from talk to outcome. Patient Education and Counseling, 92(3), 286–91. http://doi.org/10.1016/j.pec.2013.05.004
Street, R. L., & Epstein, R. M. (2007). Patient-Centered Communication in Cancer Care: Promoting Healing & Reducing Suffering. Bethesda, MD: NIH publication.
Street, R. L., Makoul, G., Arora, N. K., & Epstein, R. M. (2009). How does communication heal? Pathways linking clinician-patient communication to health outcomes. Patient Education and Counseling, 74(3), 295–301. http://doi.org/10.1016/j.pec.2008.11.015
Uhlmann, W. R., Schuette, J. L., & Yashar, B. M. (2009). A guide to genetic counseling. (W. R. Uhlmann, J. L. Schuette, & B. M. Yashar, Eds.) (2nd ed.). Hoboken, NJ: Wiley-Blackwell.
Veach, P. M., Bartels, D. M., & LeRoy, B. S. (2007). Coming full circle: A reciprocal-engagement model of genetic counseling practice. Journal of Genetic Counseling, 16, 713–728. http://doi.org/10.1007/s10897-007-9113-4
Veach, P. M., LeRoy, B., & Bartels, D. M. (2010). Genetic counseling practice : advanced concepts and skills. Wiley-Blackwell.
Veach, P. M., LeRoy, B. S., & Bartels, D. M. (2003). Facilitating the genetic counseling process: a practice manual. New York: Springer-Verlag.
Wang, C., Gonzalez, R., & Merajver, S. D. S. D. (2004). Assessment of genetic testing and related counseling services: current research and future directions. Social Science & Medicine, 58, 1427–1442. http://doi.org/10.1016/S0277-9536(03)00337-X
Wiseman, M., Dancyger, C., & Michie, S. (2010). Communicating genetic risk information within families: a review. Familial Cancer, 9(4), 691–703. http://doi.org/10.1007/s10689-010-9380-3
Witte, K. (1992). Putting the fear back into fear appeals: The extended parallel process model. Communication Monographs, 59(4), 329–349. http://doi.org/10.1080/03637759209376276
Zellerino, B. C., Milligan, S. A., Gray, J. R., Williams, M. S., & Brooks, R. (2009). Identification and prioritization of quality indicators in clinical genetics: an international survey. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics, 151C(3), 179–90. http://doi.org/10.1002/ajmg.c.30220
Zierhut, H. A., Shannon, K. M., Cragun, D. L., & Cohen, S. A. (2016). Elucidating Genetic Counseling Outcomes from the Perspective of Genetic Counselors. Journal of Genetic Counseling, 25(5), 993–1001. http://doi.org/10.1007/s10897-015-9930-9